Some of these questions may be: Why do you recommend this treatment? What about aftercare? Recovery time? What to expect when I see my baby after surgery? Support after surgery? Potential risks? Survival rate? Experience of the team? What can go wrong and how often do they? How are we included in the decision-making process? How long is the hospital stay? Do you share your results publicly? And a few other questions.
I have been seeing a cardiologist at least once a year for the past 20+ years. I still have questions.
Sometimes when I walk out of the consulting rooms I think “I should have asked …….” And then I feel so stupid. Although it’s long ago my mother has told me how many questions she had before and after my open-heart surgery. So what are some of the questions to ask before pediatric open-heart surgery?
With untreated or “uncorrected” patients only 3% survive past the age of 40. But as with all things, there are exceptions to this. If the condition is corrected early the patient has a normal life expectancy. Even with corrective operations later, life expectancy can be normal.
I was wondering what the life expectancy is of a Tetralogy of Fallot baby because I am one. My TOF was corrected with surgery in 1976 in Bloemfontein South Africa. Except for some problems with Atrial Fibrillation I have lived a normal and full life. My name is Janco Vorster and I am a Tetralogy of Fallot survivor. I blog about Tetralogy of Fallot, Atrial Fibrillation, Ectopic heartbeats, PAC, Anxiety, Panic attacks, and #thoughtarrest. What is Tetralogy of Fallot, how serious is it and what are some of the success stories?