Tag Archives: Tetralogy of Fallot

How old can you get with Tetralogy of Fallot? TOF heart condition.

Tetralogy of Fallot
Tetralogy of Fallot

With untreated or “uncorrected” patients only 3% survive past the age of 40. But as with all things, there are exceptions to this. If the condition is corrected early the patient has a normal life expectancy. Even with corrective operations later, life expectancy can be normal.

I was wondering what the life expectancy is of a Tetralogy of Fallot baby because I am one. My TOF was corrected with surgery in 1976 in Bloemfontein South Africa. Except for some problems with Atrial Fibrillation I have lived a normal and full life. My name is Janco Vorster and I am a Tetralogy of Fallot survivor. I blog about Tetralogy of Fallot, Atrial Fibrillation, Ectopic heartbeats, PAC, Anxiety, Panic attacks, and #thoughtarrest. What is Tetralogy of Fallot, how serious is it and what are some of the success stories?

Continue reading How old can you get with Tetralogy of Fallot? TOF heart condition.

A Mother’s experience- Tetralogy of Fallot(TOF).

Myafibheart.com, Tetralogy of Fallot
My mother with her Tetralogy of Fallot son . https://www.myafibheart.com/blog/

Tetralogy of Fallot and other stress

I was born with Tetralogy of Fallot. I’m 48 now. I work in Law Enforcement and have been in many scary situations. I’ve had open heart surgery, one ablation, 8 cardioversions. A few car accidents and a motorbike accident. Then there also was that near-drowning incident and a few cycle falls, blood stitches and all. Sorry, Mom that I make you stress so much.

After my Mom read my blog she decided to write about her experience with me as a “blue baby” who had Tetralogy of Fallot. She had to go through a lot to raise me. Here is her letter:

My Mother’s perspective

Janco was born in a nursing home in Sasolburg South Africa in January 1971. My pregnancy was normal and my GP was satisfied with my progress. It was a normal birth.

But when Janco was born his whole body was blue. I was concerned but my GP said that some babies are blue at birth. At home, Janco was a calm baby. My second concern was that Janco only drank a little milk, then stopped as if it was a big effort to drink the milk, he was then tired and fell asleep. My third concern was that his nails and lips were blue.

Continue reading A Mother’s experience- Tetralogy of Fallot(TOF).

TOF, AFIB heartbeat and Anxiety journey

TOF, AFIB Heartbeat and Anxiety.
TOF, AFIB Heartbeat and Anxiety journey

How has my TOF, AFIB heartbeat and Anxiety made my life “interesting”?

I have this urge to catalog my TOF(Tetralogy of Fallot),  AFIB heartbeat and Anxiety journey. Why?……Hmmm. Just to see it there. On “paper” or rather a screen. To remind me to be grateful to so many people, to know anything is possible. To thank God.

So I write because it gives me perspective, insight and possibly hope to others too. In this journey, there were a few times that I thought THIS IS IT!! No hope! But every time there was something. When I saw how my heart made my shirt bounce and felt like I was going to die, but miraculously I lived! (At age 23) It made me grateful for everything. Could my curse be a blessing? Continue reading TOF, AFIB heartbeat and Anxiety journey